First of all, Becky and I are thankful for your prayer, calls, and visits. It's wonderful to have such support during this time.
Titus was transported to Medical City of Dallas NICU last evening. He was evaluated by a host of specialists today and we expect tomorrow they will be able to determine the best treatment for Titus. Titus is stabilized and resting very peacefully in the NICU. He is still on the CPAC, but the oxygen level is at the lowest setting and it's mainly for the airflow to keep his air passages open. His breathing and air passage are the biggest concern and the cranio-facial specialist and ENT are discussing the best ways to treat this (jaw detraction or tracheotomy).
The cardiologist did a sono/echo on his heart and stated his heart is fine for a baby 24 hours old. The murmur they are hearing is totally normal for newborns and they will continue to watch, but he is not overly concerned. They also did a brain sono and everything looks good (although the brain sono does not tell them much - just they things are in the place where they need to be). They have sent his blood for chromosomal testing and the geneticist will be up tomorrow. They do not expect results back from the chromosome testing for up to 7 days.
Titus does have one foot that is turning in significantly at the ankle and they have also detected an extra vertebrae at the base of his spine that's not a fully formed vertebrae. These items, along with the cleft palate will be addressed at a later date, but are totally correctable and will not hinder his growth/development.
The best guess right now is that Titus could be in the NICU between 2-4 weeks. Of course, that could change tomorrow and could change again next week. Once they determine the best course of action for his breathing, they will tackle the best way to feed him. Feeding issues need to be resolved before he will be released to come home. They are feeding him breast milk through a feeding tube every 3 hours.
Becky was released from Baylor Frisco this morning and came down to see Titus this afternoon. Aidan and Noah, along with both sets of grandparents were able to go back and see him this afternoon. Beck is spending the night at the hospital in a courtesy room they have provided.
Email is probably the best way to contact us at this time (preferably my email and not Becky's). I do have my laptop with me at the hospital and they have free WIFI so I am connected. Our cell phones are off when we are in the NICU, so we may not answer when you call.
Thanks again for the prayers and support. I'll send an update once we know more.
Titus was transported to Medical City of Dallas NICU last evening. He was evaluated by a host of specialists today and we expect tomorrow they will be able to determine the best treatment for Titus. Titus is stabilized and resting very peacefully in the NICU. He is still on the CPAC, but the oxygen level is at the lowest setting and it's mainly for the airflow to keep his air passages open. His breathing and air passage are the biggest concern and the cranio-facial specialist and ENT are discussing the best ways to treat this (jaw detraction or tracheotomy).
The cardiologist did a sono/echo on his heart and stated his heart is fine for a baby 24 hours old. The murmur they are hearing is totally normal for newborns and they will continue to watch, but he is not overly concerned. They also did a brain sono and everything looks good (although the brain sono does not tell them much - just they things are in the place where they need to be). They have sent his blood for chromosomal testing and the geneticist will be up tomorrow. They do not expect results back from the chromosome testing for up to 7 days.
Titus does have one foot that is turning in significantly at the ankle and they have also detected an extra vertebrae at the base of his spine that's not a fully formed vertebrae. These items, along with the cleft palate will be addressed at a later date, but are totally correctable and will not hinder his growth/development.
The best guess right now is that Titus could be in the NICU between 2-4 weeks. Of course, that could change tomorrow and could change again next week. Once they determine the best course of action for his breathing, they will tackle the best way to feed him. Feeding issues need to be resolved before he will be released to come home. They are feeding him breast milk through a feeding tube every 3 hours.
Becky was released from Baylor Frisco this morning and came down to see Titus this afternoon. Aidan and Noah, along with both sets of grandparents were able to go back and see him this afternoon. Beck is spending the night at the hospital in a courtesy room they have provided.
Email is probably the best way to contact us at this time (preferably my email and not Becky's). I do have my laptop with me at the hospital and they have free WIFI so I am connected. Our cell phones are off when we are in the NICU, so we may not answer when you call.
Thanks again for the prayers and support. I'll send an update once we know more.
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