Titus is oxygen free!
Last week, I went to check him before heading to bed and his oxygen sats (SATS) were at 100%. I then checked his face and noticed his canula was totally out of his nose - so we decided - let's see how long he can go. And, he went 5 hours.
So the next day, we tested again - and he went all day long.
He's gone a few night without oxygen but over the weekend, we noticed his SATS were sinking a bit at night and taking awhile to recover, so we've putting him back on oxygen at night. But during the day, he is untethered and oxygen free!!!
After 5 months of being on oxygen, having a cord trail behind you all over the house, switching over to the smaller portable tank when leaving the house, constantly checking to make sure his canula is in his nose, it's an incredible feeling to be able to pick up my child without having that hose around him. He even looks so different with out it.
I'll post pics this week (camera is in the shop but should be coming back soon).
Thank you so much for the prayers in this area - and please keep praying. He's making marked improvement in so many areas.
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