The Life of Titus: Sleep Test

Monday, August 11, 2008

Sleep Test

Titus is going in for a sleep test tonight. He's been off oxygen for a month now and during the day does great. But at nighttime, after he's been asleep for about an hour, his oxygen saturations level sink and we have been putting him on oxygen to get him back up. Generally during the night, he starts playing with his oxygen tube/canula and takes it back out - some nights he's fine, but other nights, his SATS go up and down. So, they are doing a sleep test to see if they can pinpoint the reasons why. Becky will be staying with him all night. Your prayers are appreciated.

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Introduction

This all began with emails, random thoughts, and prayer requests when our 5th son, Titus Beck, was born. From the moment he was born, issues arose which have led us on a new journey of faith.

Titus was born with micronagthia (recessed chin) that blocked his breathing, cleft palate, profound deafness, blindness, Dandy-Walker variant, ASD/VSD, hemi-vertebrae in the spine, and the list continues. He has had 8 surgeries in 14 months and spent 115 days in the NICU or PICU.

And yet, with all of that, Titus is gift from God, a blessing, a content and happy baby.

And along with Titus, we have 4 other boys, 2 golden retrievers, 2 nurses, and whole cast of characters that flow in and out of our house. To us, it's quite routine and normal, but others don't seem to see it that way. Follow along the journey of our daily life.