Several months ago, we contacted Cincinnati Children's about Titus and seeing if he would be a candidate for airway reconstruction. Titus has a "floppy" airway- and many of our doctors believed he would outgrow it. But, here we are with Titus about to turn two and we are still on oxygen due to his airway issues.
We found out a few weeks ago that Titus' case was reviewed and he was approved to be a candidate. And we found out last week that we have a date for the evaluation. They will do a 4-day evaluation with a team of doctors looking at the entire breathing/swallowing/airway issue. After the evaluation, they will decide if he would be a candidate for surgery. We go to Cincinnati on Nov 30. Your prayers will be greatly appreciated.
Titus has been doing great the past few weeks, but he has had increase in de-sats during the night. He has learned to high-five, and his new favorite toy is the sit-n-spin. We put him on and hold him, then spin him back and forth and he just laughs outloud (which is music to our ears).
2 comments:
wonderful news! what a relief that would be for his airway, and I'm sure it would improve his eating abilities as well. it is a slow process. I know with Rachael...she is still not sitting up or crawling, but we wait and pray...
Hi Paul- This past summer I spoke with Becky at the GFI conference. At that time we were over 2.5 years into our adoption and she asked me to let her know when our boys came home. Please let her know they came home last week!
Also, we live in the Dayton area so if you need something while in Cincinnati please feel free to contact us. We would be happy to give you a break or provide some diversion!
rjmnal@yahoo.com
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