Friday, September 24, 2010

Titus Update

Titus has had a great week. Whatever virus he had last week that caused the increase in secretions has now worked it's way out of his system and he has been doing good.

On Wednesday, Titus had a scheduled appt with his pulmonologist. Dr G. was very impressed with Titus. He stated his breathing was the best he's ever seen it. We do believe it is because of the consistent breathing treatments and use of the Vest (vibrating/pulsating vest) twice a day.

Titus continues to make small improvement in therapy. He is taking more "steps" in the gait trainer and is repeating actions from games he has been taught. He occasionally also shows a little "attitude" in therapy when he doesn't want to do something. One of the items they are beginning to work with him on is picking up items with his fingers. Much like a young baby, he grasps everything with his entire hand - whereas, they are now working on training him to pick up an item with his fingers. We would appreciate your prayers in that area.

Titus also has a scooter now - although all the boys are enjoying rolling around on it. We are working on Titus using his arms to roll himself around.



Another area of prayer is for school. When Titus turns 3 in Novembe, he will be eligible to start attending school in Frisco. Becky and I have an upcoming meeting where they will evaluate Titus (although the teacher did come to the house with one of the therapists a few weeks ago to meet him). Part of Titus going to school means that the bus will pick him up and bring him home - which also means we need his new wheelchair ordered and delivered. None of our kids have ever ridden the bus to school. When Aidan and Noah were in private school, we dropped them up and picked them up each day. And even though the school is just a few miles from the house, my emotions about putting my precious little boy on the bus (even though it's specifically designed for kids with special needs) puts a lump in my throat. But the school is wonderful and will be very beneficial for Titus.

Last of all, Becky and I will be attending a special conference this weekend for parents of visually impaired children. It starts this evening, and runs through Sunday afternoon. And then there will be 3 more weekends over the next 6 months to attend. As difficult as it is to give up an entire weekend, my prayer is that Becky and I will meet other parents and be a source of encouragement to others.

And, on Sunday, our church will be nominating the first 4 members of our Pastor Search Committee. Your prayers on this process will be much appreciated.

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