Cincinnati Children's - Day 2

Today was a busy day. We were up at 4am to give Titus his last feeding and then at the hospital by 7. Titus was promptly taken back and checked out. For his CT Scan, they were able to anesthetize him with an LMA instead of having to intubate him, and the entire procedure took 15 minutes. He wasn't a happy camper when he came out, but soon calmed down and took a good nap.

Since we had 4 hours before the next appointment, we went to the mall. I know you may think we are crazy, but since the hospital waiting rooms are filled with sick people, it's much healthier to keep him away from them - so off to the mall we went (and he was kept safe, warm and isolated from all contact in his stroller. It also allowed Becky and I to have a nice meal.

When we got back, we had 3 consults: the GI, the ENT, and the pulmonologist. Each one was very thorough in examining his charts and asking us questions. The last doctor spent 90 minutes with us and walked us through the results of the CT Scan. After he completes his bronchioscopes today, they will be able to tell us more of what they are seeing and thinking, but they are finding out a lot about his lungs and airway. It was also noticed that Titus had not been signed up for a sleep study, so with a few pulled strings, Titus was admitted to the hospital for a sleep study that night.

We have had sleep studies before, but this one was much different since it was in the controlled environment of the hospital. And, since they really wanted to see what he would do, they took him off oxygen while he was asleep - and the bells/alarms starting going off. We generally jump to get his Oxygen SATs back up quickly, but in this case, they wanted to see how Titus would respond. He would bring himself back up - but then drop again (and drop very low.). Becky was with him and it was driving her crazy to see this go on - but we knew they needed to get an accurate picture. After an hour, they put his oxygen back on, but it was a rough night for Becky in the hospital.

As I was driving back last night, one of my favorite songs was on the CD I was listening to - and the words were so apt. "His Eye is on the Sparrow" is so fitting for how I feel. And it brings great comfort to know that if God watches over the sparrows, he certainly is watching over my Titus today. What a peace it is to know that Titus is being cared for by the Great Physician.