A New Day

Becky and I have both been staying at the hospital with Titus. One of stays in the room and other stays in a sleep room (basically a closet with a bed or a European hotel room as I call it). Last night, I slept in the sleep room and Becky stayed with Titus.

I came into his room this morning around 6am. Becky was in bed with Titus. And Titus was off the BiPAP and on a high-volume nasal canula. He was awake and happy. Becky told me that he was continuing to get irritated in the night with the BiPAP and even after giving him some mild sedation, he would never settle, so they made the decision to try the canula again. His respiratory rates are back to normal levels (yesterday when they did the canula his rates were still very high).

At this moment, he is fussy while the nurse is giving him a xopenex treatment - and this is very normal for him.

The plan this morning is to wean him down on oxygen through the day to see how he does and resume normal feeds. We still don't know if they will medically transport him home - it's still an option - but if he continues to show this improvement, they may still put him with us in the car. At this point, it's hour by hour.

But, he is much better this morning - and I know it's due to the prayers of God's people.

AFTERNOON UPDATE:
Titus has been fussy most of the day, but we have found out the reason why. He has a corneal ulcer in his left eye which can be painful the dr say. They are starting him on drops and then want us to see his opthmalogist as soon as we get to Dallas. In the last 2 hours, he has finally calmed down and stopped fussing. We have also started him back to his normal feeds and he is doing good.

We got the portable oxygen tank filled up, but Titus is currently on .75/liter of oxygen right now and has not de-SATed all day.

Becky has been to Columbus to pick up Aidan and Noah (and Buttercup). Yes, we sent two boys away and we are getting two boys and kitten back. (I know what you are thinking, but remember, we already know we are crazy. ) Aidan has been asking for a cat for the last 2 years, and we need a good mouser at the house since the mice are back for Christmas (Quita, the golden retriever has already caught two in the house and dropped them at our feet - lovely).

I may not get to update till we get home, but your prayers and notes of encouragement have carried us through the last few days. We still have some heavy-duty decisions to make. As we have said to the doctors, we did not get the answers we were expecting, but we got new information that will help us with his care. We plan on leaving early in the morning and driving straight through to Dallas - so please keep us in your prayers all day tomorrow.