Another Week of Appointments

As I mentioned last week, Titus had 3 doctor's appointments (cardiologist, hematologist, and developmental specialist). This week and next, he has several more very important appointments that I would appreciate your prayers on.

Tomorrow, Titus has a swallow study. He had one done last year, but now that his cleft palate has been repaired, we have to do another swallow study before we can start feeding therapy. We feel very confident that he has no issues with swallowing since we have been giving him tastes of things. (He really likes chocolate icing). Once this is complete, then we can start feeding therapy. But we anticipate it will still be a long road ahead of feeding therapy before they can take out the feeding tube.

Then Titus has a follow-up appointment with the ENT - nothing major there - just a follow-up.

And on Sunday, Becky and the boys will be driving down to Houston for his Pediatric Opthmalogist appointment for his eyes. As many of you remember, Titus had pediatric glaucoma and at the time, the only doctor that would see us immediately was in Houston, thus we go to Houston for these appointments. This will be an EUA - evaluation under anesthetic - which means they intubate him, anesthetize him, and check his eye pressure levels and other workings. The last few times, our appointments have been early in the morning, so we were able to leave that afternoon to come home. But this time, his appointment is Monday afternoon, which means by the time they get him back from the evaluation and out from anesthetic, he may have to spend the night in the hospital. Putting Titus under is always an issue with his lungs - so not only are we requesting prayers that his eye pressures are fine, but that he can go under and come back out with no lingering issues. If they do find anything during the exam, they will perform surgery right then - but the last 2 exams have been fine, so we anticipate another good report.

And on top of all that, he has 4 teeth coming in and is biting everything that he can get his hands on (including our fingers). It's definitely a mixed blessing. Many kids who have been intubated or vented for long periods of time (like Titus) become orally averse and don't like anything coming near or going into their mouths. But our little man is chewing on whatever he can get his hands on and is putting everything in his mouth. But just like any other baby, teething makes for cranky babies and weird poo. And frankly, I can deal with the crankiness better than the poo since the poo tends to go EVERYWHERE!

Thanks for all the prayers and support and for all of you who check the blog regularly. We never take for granted that Titus (and all of us) are covered in your prayers.