Titus went for his semi-annual checkup with the development specialist this week. Titus was asleep when we got there and was a little groggy after waking up. We really wanted him to wakeup and be alert so the development specialist could see how he was doing - it's one thing to tell them what he can do, but you really want them to see it for themselves. After 45 minutes, Titus "woke up" and started playing on the floor - passing toys from one hand to the other, taking toys to his mouth to chew on them, tracking movement with his eyes, and babbling. His height and weight are finally on the developmental charts, although he is a little chunky for his height.
He is holding himself in a sitting position for a few seconds and showing good strides in therapy. He's also cutting 3-4 teeth right now and really chewing on things. The specialist stated he's around 4-5 months developmentally, but should make big cognitive strides when he is able to sit up.
And then today, Titus had another appointment with the hematologist to check his blood. Titus has large red-blood cells - and they reproduce faster than they are suppose to. It's not really a problem but just one more anomoly that Titus has. His blood levels were good.
These two appointments were in addition to the 4 trips to therapy during the week.
Honestly, these appointments are draining. It's hard to sit there and answer the questions on what he can and cannot do. It's hard to be told where he is and not know how far he may progress. It's hard to fill out a form ordering equipment from Dallas Wheelchair Company, knowing that's where we are probably headed. Therapy is hard and if we don't follow-up at home, Titus doesn't show improvement. And please, don't take this the wrong way - I'm not griping/whining, I'm just being honest that it's hard work.
Hebrews 12:1 states "let us run with perseverance the race marked out for us". This is our race, this is our course, and we are running. Lord, I pray for perseverance for me and Becky, I pray for strength, I pray we continue to run and not stop.
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