The Life of Titus: Results

Thursday, April 23, 2009

Results

Titus did good on his swallow study yesterday. We can start giving him small sips or formula to work on his swallowing muscles.

As the day progressed yesterday, Titus became more and more congested. His breathing was struggling a bit and since they were out at doctor's appointments, they didn't have the breathing machine with him to provide him a treatment. So, his ENT appointment was cancelled and we have bumped up his breathing treatments the last 24 hours. He's not running a fever and is being his normal self, but he will start coughing or wheezing and his secretions are increased.

We will be increasing his breathing treatments over the next few days and we've increase his oxygen, but we cancelled his opthmalogist appointment in Houston for Monday since this is the type of thing that would keep him in the hospital indefinitely if he were to go under anesthesia.

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Introduction

This all began with emails, random thoughts, and prayer requests when our 5th son, Titus Beck, was born. From the moment he was born, issues arose which have led us on a new journey of faith.

Titus was born with micronagthia (recessed chin) that blocked his breathing, cleft palate, profound deafness, blindness, Dandy-Walker variant, ASD/VSD, hemi-vertebrae in the spine, and the list continues. He has had 8 surgeries in 14 months and spent 115 days in the NICU or PICU.

And yet, with all of that, Titus is gift from God, a blessing, a content and happy baby.

And along with Titus, we have 4 other boys, 2 golden retrievers, 2 nurses, and whole cast of characters that flow in and out of our house. To us, it's quite routine and normal, but others don't seem to see it that way. Follow along the journey of our daily life.