Current Situation

Many of you have written asking for an update - and I am really trying to keep from overflowing your mail box with mail, but here is the latest on Titus Beck.

He is very stable in the NICU at Medical City Dallas. They have removed the large CPAC machine that was supplying oxygen and forcing air down his air way and replaced with a small oxygen line. He is on 21% oxygen (which is the same level we breathe), and the air flow is turned down very low - which means our little man is doing a lot of breathing on his own. In fact, he pulls his breathing tube out of his nose numerous times a day and seems to do quite well without it.

Titus is being fed through a feeding tube through his mouth and they have increased the amount of milk he is taking each day. He is completely digesting his feedings and if I might say, has been quite the poop machine. It seems like every time I'm there, the nurses have some poo to clean up (but the NICU nurses have now asked me to change the diapers which I quite happily do).

He was a little jaundiced today, so he has spent the day under the photo therapy lights and we are praying his levels are back down to normal tomorrow. But, we were able to hold him for the first time today. How precious it was to have our son placed in our arms for the first time.

As Becky and I were talking today, we have been amazed to see God in the details, and I thought I would share some of those with you. As we look back, we realize God has orchestrated all of these events, even down to the littlest things. Here are a few of them:

Within minutes of sending out the first email, I received a reply back from Scott Dillashaw. Scott directs the Bible Fellowship Class I teach at First Baptist McKinney. Scott showed up at the hospital in immediately and let us know that their youngest had gone through the same thing. Scott then followed me down to Medical City Dallas where he is the chairman of the Family Advisory Board. Our cranio-facial surgeon is the same one they had and many of the nurses know Scott & Jill and his family. What a comfort it was to have Scott there by my side, along with Brad Cole and Trey Letcher. Their prayers and support that first night were invaluable.
The cranio-facial surgeon, Dr. David Genecov, came by to explain to me more of his findings after he had evaluated Titus. Titus's chin is underdeveloped and recessed and the concern is that this pushes the tongue back over the air way making it difficult to breathe. After evaluating Titus, he noted 2 things: 1) Titus has a small tongue (and small tongues are not common in the Daily family - just look at Aidan's sometimes) and 2) Titus is "tongue-tied" (non-technical term), but basically his tongue is attached below the tongue - and this is helping keep his air way open. God knew Titus needed those recessive genes to rule out when he was forming Titus.
Here are a few things that you can pray specifically for:

• Titus will have a CT Scan Monday - we are praying for normal results on the brain and that the scan will clearly assist the doctors in determining the best course of treatment.


• Clarity for the doctors in determining the best course of treatment


• Continued peace for Aidan, Noah, Tucker, and Cade. With our kids homeschooled and with me not traveling in my job, the boys have gotten use to both Mom and Dad being around a lot. They have been troopers over the last week and our prayer for them is this is a journey of faith not a journey of fear.


• Our team of Doctors: Dr. Schwendeman, neonatologist, Dr. Genecov, cranio-facial surgeon, Dr. Biavatti, ENT, and Dr. Cramer, Genetics


• Learning to trust in our daily bread. We are very thankful for the sermon series on prayer recently from our pastor. We are truly learning to live on our daily bread. And it's made us realize how much time and effort we spend on future events, when it's today that counts. If you talk to us, you may hear us say, "we can only plan one day at a time and even then, it may change".

Last of all, I want to share with you what Becky continues to say - "God is good". After Titus was born, and we knew within those first few minutes that all the plans we had made were going to change, Becky stated the song that ran through her mind was "God is Good, God is Good, God is very, very, very, very Good". She shared that with the boys at dinner the other night, and we all sat there around the table and sang that song together. Whatever the course, whatever the path, God is good.