Monday, November 3, 2008

You're Invited!


In just a few days, Titus will be celebrating his first birthday on November 14. What an incredible year it has been - one that we never would have imagined and yet, looking back, it has been a journey that we are thankful for.

To celebrate, we would like to invite you to stop by on Saturday, Nov 15 between 4-6 pm for a piece of cake and to let us express how much we appreciate all the prayers, all the help, all the love you have shown our family this past year. So to our family, friends, neighbors, doctors/nurses/therapists, co-workers, and prayer warriors, you are all included/invited/welcomed to stop by and celebrate. At 5pm, we will have a prayer of thanksgiving and blessing.

Now, I know some of you are thinking we aren't serious, but we are. We know these emails have been forwarded out, printed out, and passed out to hundreds of people we do not know or have never met, but we would love to meet you and share with your our thanks on this special day. So, if you are in Frisco, Texas on Saturday, Nov 14, please stop by. I'll send our address and directions when you RSVP (via email). And please - no gifts - you all have already blessed us and provided us with so much.

Titus is doing great. There has been an awakening of sorts in the last few months. He has made great strides in therapy and although we still have a very long way to go, it's encouraging to know he is showing promise. He is really beginning to "play" with toys, provide us with cues that let us know to continue and he lets us know when he is enjoying an activity. He has become quite mobile on the floor, pushing himself around and rolling over occasionally. When you have him in a sitting position on your lap, he is leaning forward (or doing crunches as I call it). When he leans forward, he gets a kiss on forehead, and then he laughs, arches his back to go back down, and then does it again. He does this numerous times until he's worn out.

As mentioned on the blog, his surgery for his cleft palate is scheduled for January 15, 2009 unless there is a cancellation sooner. But, looking back, Titus has not had any major setbacks/illnesses/hospitalizations since April. This in itself is amazing.

Titus has a night nurse that comes and sits with him 3 nights a week. Although his sleeping has improved and he is sleeping through the night, it gives Becky and I a break to shut the door and sleep uninterrupted knowing that Vanessa is in there taking care of him. Vanessa loves him dearly and Titus knows when she is there. He melts into her arms and goes fast asleep. We tell her she can put him in the crib, but we think the two of the enjoy their time together. Last week, I was finishing up feeding Titus when Vanessa arrived. As she walked into the room, he turned to her, smiled, and he just knew she was there.

During the week we have two aides that come during the day to assist - Becky's mom and Melissa. They take Titus to therapy, assist around the house, wash the dishes/clothes, and love on Titus. Again, what a blessing they are to us. Starting this week, we will also have several hours of nursing visits start to assist in watching over him. This provides Becky time to continue homeschooling the boys.

I have so much more to share, but it's late and I'll save it for the party.

2 comments:

Sue Berk said...

bummer! we have plans that day already. I would have loved to finally meet Becky, all of you, and especially Titus. I do have a little something to give Titus, so I will call Becky to get your address, and will send it to you. And hopefully I will get to meet Titus someday soon...
Sue Berk

Mark said...

If we were there we'd come visit! What a glorious journey Titus has had and you've had as his guides. We love your family from afar and know we'll be thinking of you on his special day!