I realized I have not updated the blog on Titus status since we have been back from Cincinnati. Titus is doing great. He is so happy to be home and back in his familiar environment. The day before we left Cincinnati, the doctors detected a corneal ulcer. We had to give him drops and ointment every 2 hours the first day, then alternated every hour the next few days. Since we have been home, he's had two trips to the opthmalogist to check it out, and it looks like the medicine has done the trick. Except that now he has a huge stye or chalazion in his other eye. So now his right eye is almost swollen shut.
We have also had updates with our pulmonologist and ENT who have reviewed the reports/scans from the doctors in Cincinnati.
Titus has also gone back to his therapy routine. They are putting him in a gate trainer at therapy (much like a baby walker) and he is pushing himself around the room. He has made incredible progress.
After much prayer and discussion, we have decided that we are not going to trach/vent Titus. There is no guarantee that it would improve his breathing or prolong his life. And this solution would drastically change his life as it would require 24 hour nursing care and limited mobility. We want Titus to enjoy life to the fullest and experience all he can. As a friend of our's daughter stated "Titus has never done what the doctor's expected him to do" and that pretty much sums up our feelings. Titus is happy, content, and a blessing and only God knows the full plan for his life. We plan to enjoy every minute of it with him.
And truly, this is how life is to be lived - not in fear of what could happen but in anticipation of what life is today. So we pray, "give us today our daily bread" and look forward to the blessings each day brings.
2 comments:
We are so glad to hear Titus is adjusting back to being home. Praise God you are at peace with your decision. God knows the plans he has for Titus and his life. Keep trusting in him. I am so glad you have this blog so you can count the miracles that have already happened in his life. It was such a blessing seeing you. We hope you have a peaceful and relaxing Christmas!
In Christ,
The Andrus Family
I am so glad you are not doing a trach for Titus. We were told Rachael would need one because her vocal cords weren't working right. Turned out they were swollen from reflux, not because they were damaged. Thank God we didn't do a trach at that point. Doctors always seem to give the worst case scenario and we believed it, but skeptically. I am so glad you take this approach as well, because I believe that Titus will continue to amaze you--and them...
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