The Life of Titus: Cutie Pie

Friday, August 28, 2009

Cutie Pie

Titus fell asleep while feeding - and although he doesn't really hold his feeding tube while we feed him, he does "hold" it (and a few times, has pulled the syringe out of the tube which makes for a lovely mess to clean up.

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Introduction

This all began with emails, random thoughts, and prayer requests when our 5th son, Titus Beck, was born. From the moment he was born, issues arose which have led us on a new journey of faith.

Titus was born with micronagthia (recessed chin) that blocked his breathing, cleft palate, profound deafness, blindness, Dandy-Walker variant, ASD/VSD, hemi-vertebrae in the spine, and the list continues. He has had 8 surgeries in 14 months and spent 115 days in the NICU or PICU.

And yet, with all of that, Titus is gift from God, a blessing, a content and happy baby.

And along with Titus, we have 4 other boys, 2 golden retrievers, 2 nurses, and whole cast of characters that flow in and out of our house. To us, it's quite routine and normal, but others don't seem to see it that way. Follow along the journey of our daily life.